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Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

BACKGROUND: The French Cystic Fibrosis Registry takes a census of the population of patients and records their annual data transmitted by Cystic Fibrosis Centers (CFCs). Quality of patient data has been a focus in the past years, with the implementation of automated controls before data integration....

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Bibliografske podrobnosti
izdano v:Orphanet J Rare Dis
Main Authors: Pellen, Nadine, Guéganton, Laëtitia, Pougheon Bertrand, Dominique, Rault, Gilles
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2018
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC6225547/
https://ncbi.nlm.nih.gov/pubmed/29799383
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0750-x
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