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Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry
BACKGROUND: The French Cystic Fibrosis Registry takes a census of the population of patients and records their annual data transmitted by Cystic Fibrosis Centers (CFCs). Quality of patient data has been a focus in the past years, with the implementation of automated controls before data integration....
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| Publicat a: | Orphanet J Rare Dis |
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| Autors principals: | , , , |
| Format: | Artigo |
| Idioma: | Inglês |
| Publicat: |
BioMed Central
2018
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| Matèries: | |
| Accés en línia: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6225547/ https://ncbi.nlm.nih.gov/pubmed/29799383 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0750-x |
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