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Return of Individual Results in Epilepsy Genomic Research: A View from the Field

Genomic findings are emerging rapidly in two large, closely related epilepsy research consortia, the Epilepsy Phenome/Genome Project and Epi4K. Disclosure of individual results to participants in genomic research is increasingly viewed as an ethical obligation, but strategies for return of results w...

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Detalhes bibliográficos
Publicado no:Epilepsia
Main Authors: Ottman, Ruth, Freyer, Catharine, Mefford, Heather C., Poduri, Annapurna, Lowenstein, Daniel H.
Formato: Artigo
Idioma:Inglês
Publicado em: 2018
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6119474/
https://ncbi.nlm.nih.gov/pubmed/30098010
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/epi.14530
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