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IRB PERSPECTIVES ON THE RETURN OF INDIVIDUAL RESULTS FROM GENOMIC RESEARCH

PURPOSE: Return of individual research results from genomic studies is a hotly debated ethical issue in genomic research. However, the perspective of key stakeholders—Institutional Review Board (IRB) reviewers—has been missing from this dialogue. This study explores the positions and experiences of...

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Detalhes bibliográficos
Main Authors: Dressler, Lynn G., Smolek, Sondra, Ponsaran, Roselle, Markey, Janell M., Starks, Helene, Gerson, Nancy, Lewis, Susan, Press, Nancy, Juengst, Eric, Wiesner, Georgia L.
Formato: Artigo
Idioma:Inglês
Publicado em: 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3493147/
https://ncbi.nlm.nih.gov/pubmed/22241094
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2011.10
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