Psychosocial Profiles of Parents of Children with Undiagnosed Diseases: Managing Well or Just Managing?

Little is known about the psychosocial profiles of parents who have a child with an undiagnosed chronic illness. The National Institutes of Health Undiagnosed Diseases Network (UDN) evaluates individuals with intractable medical findings, with the objective of discovering the underlying diagnosis. W...

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Bibliographic Details
Published in:J Genet Couns
Main Authors: McConkie-Rosell, Allyn, Hooper, Stephen R., Pena, Loren D. M., Schoch, Kelly, Spillmann, Rebecca C., Jiang, Yong-Hui, Cope, Heidi, Palmer, Christina, Shashi, Vandana
Format: Artigo
Language:Inglês
Published: 2018
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Article
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC6028305/
https://ncbi.nlm.nih.gov/pubmed/29297108
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10897-017-0193-5
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