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Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers

BACKGROUND: Evidence-based guidelines for sickle cell disease (SCD) health maintenance and management have been developed for primary health care providers, but not for individuals with SCD. To improve the quality of care delivered to individuals with SCD and their caregivers, the main purposes of t...

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Détails bibliographiques
Publié dans:BMC Hematol
Auteurs principaux: Cronin, Robert Michael, Mayo-Gamble, Tilicia L., Stimpson, Sarah-Jo, Badawy, Sherif M., Crosby, Lori E., Byrd, Jeannie, Volanakis, Emmanuel J., Kassim, Adetola A., Raphael, Jean L., Murry, Velma M., DeBaun, Michael R.
Format: Artigo
Langue:Inglês
Publié: BioMed Central 2018
Sujets:
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC5994026/
https://ncbi.nlm.nih.gov/pubmed/29977566
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12878-018-0106-3
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