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Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers

BACKGROUND: Evidence-based guidelines for sickle cell disease (SCD) health maintenance and management have been developed for primary health care providers, but not for individuals with SCD. To improve the quality of care delivered to individuals with SCD and their caregivers, the main purposes of t...

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Bibliografske podrobnosti
izdano v:BMC Hematol
Main Authors: Cronin, Robert Michael, Mayo-Gamble, Tilicia L., Stimpson, Sarah-Jo, Badawy, Sherif M., Crosby, Lori E., Byrd, Jeannie, Volanakis, Emmanuel J., Kassim, Adetola A., Raphael, Jean L., Murry, Velma M., DeBaun, Michael R.
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2018
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5994026/
https://ncbi.nlm.nih.gov/pubmed/29977566
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12878-018-0106-3
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