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Rare disease: a national survey of paediatricians’ experiences and needs

OBJECTIVE: To describe the experiences of Australian paediatricians while caring for children with rare diseases, and their educational and resource needs. DESIGN: A brief online survey was developed and deployed to a representative sample of 679 paediatricians from the Australian Paediatric Surveil...

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Dades bibliogràfiques
Publicat a:BMJ Paediatr Open
Autors principals: Zurynski, Yvonne, Gonzalez, Aranzazu, Deverell, Marie, Phu, Amy, Leonard, Helen, Christodoulou, John, Elliott, Elizabeth
Format: Artigo
Idioma:Inglês
Publicat: BMJ Publishing Group 2017
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5862166/
https://ncbi.nlm.nih.gov/pubmed/29637168
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjpo-2017-000172
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