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Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays
BACKGROUND: Children and families living with rare disease often experience significant health, psychosocial, economic burdens and diagnostic delays. Experiences appear to be constant, regardless of the specific rare disease diagnosis. Systematically collected Australian data to support policy respo...
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| Publicado no: | Orphanet J Rare Dis |
|---|---|
| Main Authors: | , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2017
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5387276/ https://ncbi.nlm.nih.gov/pubmed/28399928 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0622-4 |
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