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Readability of informed consent forms for whole-exome and whole-genome sequencing

Whole-exome and whole-genome sequencing (WES, WGS) can generate an unprecedented amount of complex information, making the informed consent (IC) process challenging. The aim of our study was to assess the readability of English IC forms for clinical whole-exome and whole-genome sequencing using the...

Täydet tiedot

Tallennettuna:
Bibliografiset tiedot
Julkaisussa:J Community Genet
Päätekijät: Niemiec, Emilia, Vears, Danya F., Borry, Pascal, Howard, Heidi Carmen
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: Springer Berlin Heidelberg 2017
Aiheet:
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC5849699/
https://ncbi.nlm.nih.gov/pubmed/28856579
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0324-6
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