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Readability of informed consent forms for whole-exome and whole-genome sequencing

Whole-exome and whole-genome sequencing (WES, WGS) can generate an unprecedented amount of complex information, making the informed consent (IC) process challenging. The aim of our study was to assess the readability of English IC forms for clinical whole-exome and whole-genome sequencing using the...

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Pubblicato in:J Community Genet
Autori principali: Niemiec, Emilia, Vears, Danya F., Borry, Pascal, Howard, Heidi Carmen
Natura: Artigo
Lingua:Inglês
Pubblicazione: Springer Berlin Heidelberg 2017
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5849699/
https://ncbi.nlm.nih.gov/pubmed/28856579
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0324-6
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