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Readability of informed consent forms for whole-exome and whole-genome sequencing

Whole-exome and whole-genome sequencing (WES, WGS) can generate an unprecedented amount of complex information, making the informed consent (IC) process challenging. The aim of our study was to assess the readability of English IC forms for clinical whole-exome and whole-genome sequencing using the...

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Detalhes bibliográficos
Publicado no:J Community Genet
Main Authors: Niemiec, Emilia, Vears, Danya F., Borry, Pascal, Howard, Heidi Carmen
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5849699/
https://ncbi.nlm.nih.gov/pubmed/28856579
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0324-6
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