Readability of informed consent forms for whole-exome and whole-genome sequencing

Whole-exome and whole-genome sequencing (WES, WGS) can generate an unprecedented amount of complex information, making the informed consent (IC) process challenging. The aim of our study was to assess the readability of English IC forms for clinical whole-exome and whole-genome sequencing using the...

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Bibliografiske detaljer
Udgivet i:J Community Genet
Main Authors: Niemiec, Emilia, Vears, Danya F., Borry, Pascal, Howard, Heidi Carmen
Format: Artigo
Sprog:Inglês
Udgivet: Springer Berlin Heidelberg 2017
Fag:
Original Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5849699/
https://ncbi.nlm.nih.gov/pubmed/28856579
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0324-6
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