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Standard measures for sickle cell disease research: the PhenX Toolkit sickle cell disease collections

Standard measures and common data elements for sickle cell disease (SCD) will improve the data quality and comparability necessary for cross-study analyses and the development of guidelines that support effective treatments and interventions. In 2014, the National Institutes of Health, National Hear...

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Detalhes bibliográficos
Publicado no:Blood Adv
Main Authors: Eckman, James R., Hassell, Kathryn L., Huggins, Wayne, Werner, Ellen M., Klings, Elizabeth S., Adams, Robert J., Panepinto, Julie A., Hamilton, Carol M.
Formato: Artigo
Idioma:Inglês
Publicado em: American Society of Hematology 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5745137/
https://ncbi.nlm.nih.gov/pubmed/29296922
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1182/bloodadvances.2017010702
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