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Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review
BACKGROUND: Patients and their families have become more active in healthcare systems and research. The value of patient involvement is particularly relevant in the area of rare diseases, where patients face delayed diagnoses and limited access to effective therapies due to the high level of uncerta...
保存先:
| 出版年: | Orphanet J Rare Dis |
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| 主要な著者: | , , , , |
| フォーマット: | Artigo |
| 言語: | Inglês |
| 出版事項: |
BioMed Central
2017
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| 主題: | |
| オンライン･アクセス: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5741909/ https://ncbi.nlm.nih.gov/pubmed/29273068 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0738-6 |
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