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Developing a Patient-Directed Policy Framework for Managing Orphan and Ultra-Orphan Drugs Throughout Their Lifecycle

INTRODUCTION: Policy decisions related to orphan and ultra-orphan drugs challenge traditional decision-making processes and often frustrate those affected by them. In general, these drugs are associated with significant uncertainties around clinical benefit, ‘value for money’, affordability, and ‘ad...

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Pubblicato in:Patient
Autori principali: Menon, Devidas, Stafinski, Tania, Dunn, Andrea, Wong-Rieger, Durhane
Natura: Artigo
Lingua:Inglês
Pubblicazione: Springer International Publishing 2015
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC4315524/
https://ncbi.nlm.nih.gov/pubmed/25559762
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40271-014-0108-6
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