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Quantifying survival in Patients with Proteus Syndrome

PURPOSE: Proteus syndrome is a rare mosaic overgrowth disorder that is associated with severe complications. While anecdotal data have suggested that the lifespan of affected patients is reduced, this has not been measured. Mortality data on rare diseases is critical for assessing treatments and oth...

Deskribapen osoa

Gorde:
Xehetasun bibliografikoak
Argitaratua izan da:Genet Med
Egile Nagusiak: Sapp, Julie C., Hu, Lian, Zhao, Jean, Gruber, Ashlyn, Schwartz, Brian, Ferrari, Dora, Biesecker, Leslie G.
Formatua: Artigo
Hizkuntza:Inglês
Argitaratua: 2017
Gaiak:
Sarrera elektronikoa:https://ncbi.nlm.nih.gov/pmc/articles/PMC5720922/
https://ncbi.nlm.nih.gov/pubmed/28661492
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2017.65
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