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Parental Reflections on the Diagnostic Process for Duchenne Muscular Dystrophy: A Qualitative Study
PURPOSE: Duchenne muscular dystrophy (DMD) is a rare neuromuscular disease with no known cure. We sought to update over 30 years of research reporting on the diagnostic delays in DMD. METHODS: Through personal interviews, this study qualitatively explored parent’s experiences regarding receipt of th...
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| Publicado en: | J Pediatr Health Care |
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| Autores principales: | , |
| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
2016
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5389929/ https://ncbi.nlm.nih.gov/pubmed/27743907 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.pedhc.2016.09.002 |
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