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Diagnosis of Duchenne muscular dystrophy: experiences of parents of sufferers.

Sixty nine parents of boys suffering from Duchenne muscular dystrophy were interviewed at home. The interview explored the parents' experiences at the time of their son's diagnosis. Many families had experienced distressing delays (average 2.5 years) between the time they first became awar...

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Detalhes bibliográficos
Autor principal: Firth, M A
Formato: Artigo
Idioma:Inglês
Publicado em: 1983
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC1547093/
https://ncbi.nlm.nih.gov/pubmed/6402212
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