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Confidentiality in Biobanking Research: A Comparison of Donor and Nondonor Families' Understanding of Risks

Aims: Confidentiality of personal identifiers potentially linking the genetic results from biobanking participants back to the donor and donor relatives is a concern. The risks associated with a breach of confidentiality should be ascertained when biobanks collect samples requiring the consent of a...

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Detalhes bibliográficos
Publicado no:Genet Test Mol Biomarkers
Main Authors: Siminoff, Laura A., Wilson-Genderson, Maureen, Mosavel, Maghboeba, Barker, Laura, Trgina, Jennifer, Traino, Heather M.
Formato: Artigo
Idioma:Inglês
Publicado em: Mary Ann Liebert, Inc. 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5367914/
https://ncbi.nlm.nih.gov/pubmed/28121471
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1089/gtmb.2016.0407
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