Family decision maker perspectives on the return of genetic results in biobanking research

PURPOSE: There are many ethical considerations regarding the return of genetic results to biobanking participants, especially when biobanks collect samples from deceased organ and tissue donors that require the authorization of a family decision maker (FDM). This paper explores FDM knowledge and opi...

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Bibliographic Details
Published in:Genet Med
Main Authors: Siminoff, Laura A., Traino, Heather M., Mosavel, Maghboeba, Barker, Laura, Gudger, Glencora, Undale, Anita
Format: Artigo
Language:Inglês
Published: 2015
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Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC4600004/
https://ncbi.nlm.nih.gov/pubmed/25856669
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2015.38
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