Recommendations from the European Working Group for Value Assessment and Funding Processes in Rare Diseases (ORPH-VAL)

Rare diseases are an important public health issue with high unmet need. The introduction of the EU Regulation on orphan medicinal products (OMP) has been successful in stimulating investment in the research and development of OMPs. Despite this advancement, patients do not have universal access to...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Annemans, Lieven, Aymé, Ségolène, Le Cam, Yann, Facey, Karen, Gunther, Penilla, Nicod, Elena, Reni, Michele, Roux, Jean-Louis, Schlander, Michael, Taylor, David, Tomino, Carlo, Torrent-Farnell, Josep, Upadhyaya, Sheela, Hutchings, Adam, Le Dez, Lugdivine
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2017
Assuntos:
Position Statement
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5345269/
https://ncbi.nlm.nih.gov/pubmed/28283046
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0601-9
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