Eliciting Preferences on Secondary Findings: The Preferences Instrument for Genomic Secondary Results (PIGSR)

PURPOSE: Eliciting and understanding patient and research participant preferences regarding return of secondary test results is a key aspect of genomic medicine. A valid instrument should be easily understood without extensive pre-test counseling, while still faithfully eliciting patients’ preferenc...

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Pubblicato in:Genet Med
Autori principali: Brothers, Kyle B., East, Kelly M., Kelley, Whitley V., Frances Wright, M., Westbrook, Matthew J., Rich, Carla A., Bowling, Kevin M., Lose, Edward J., Martina Bebin, E., Simmons, Shirley, Myers, John A., Barsh, Greg, Myers, Richard M., Cooper, Greg M., Pulley, Jill M., Rothstein, Mark A., Wright Clayton, Ellen
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2016
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5326612/
https://ncbi.nlm.nih.gov/pubmed/27561086
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2016.110
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