Evaluation of a web-based registry of inherited bleeding disorders: a descriptive study of the Brazilian experience with HEMOVIDAweb Coagulopatias

BACKGROUND: Inherited bleeding disorders (IBD) consist of a group of rare heterogeneous diseases, which require treatment for life. Management of these disorders is complex and costly. Therefore, good quality data of the affected population is crucial to guide policy planning. The aim of this manusc...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Rezende, Suely Meireles, Rodrigues, Silvia Helena Lacerda, Brito, Kelly Neves Pinheiro, da Silva, Diego Lima Quintino, Santo, Marcos Lázaro, Simões, Bárbara de Jesus, Genovez, Guilherme, Melo, Helder Teixeira, Araújo, João Paulo Baccara, Barca, Danila Augusta Accioly Varella
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2017
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5303203/
https://ncbi.nlm.nih.gov/pubmed/28187737
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0560-6
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