Evaluation of a web-based registry of inherited bleeding disorders: a descriptive study of the Brazilian experience with HEMOVIDAweb Coagulopatias

BACKGROUND: Inherited bleeding disorders (IBD) consist of a group of rare heterogeneous diseases, which require treatment for life. Management of these disorders is complex and costly. Therefore, good quality data of the affected population is crucial to guide policy planning. The aim of this manusc...

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Salvato in:
Dettagli Bibliografici
Pubblicato in:Orphanet J Rare Dis
Autori principali: Rezende, Suely Meireles, Rodrigues, Silvia Helena Lacerda, Brito, Kelly Neves Pinheiro, da Silva, Diego Lima Quintino, Santo, Marcos Lázaro, Simões, Bárbara de Jesus, Genovez, Guilherme, Melo, Helder Teixeira, Araújo, João Paulo Baccara, Barca, Danila Augusta Accioly Varella
Natura: Artigo
Lingua:Inglês
Pubblicazione: BioMed Central 2017
Soggetti:
Research
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5303203/
https://ncbi.nlm.nih.gov/pubmed/28187737
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0560-6
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