טוען...

Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of life

BACKGROUND: Although research in this area remains sparse, raising a child with some genetic disorders has been shown to adversely impact maternal health and family quality of life. The aim of this study was to investigate such impacts in families with a child with the CDKL5 disorder, a newly recogn...

תיאור מלא

שמור ב:
מידע ביבליוגרפי
הוצא לאור ב:Orphanet J Rare Dis
Main Authors: Mori, Yuka, Downs, Jenny, Wong, Kingsley, Anderson, Barbara, Epstein, Amy, Leonard, Helen
פורמט: Artigo
שפה:Inglês
יצא לאור: BioMed Central 2017
נושאים:
גישה מקוונת:https://ncbi.nlm.nih.gov/pmc/articles/PMC5248472/
https://ncbi.nlm.nih.gov/pubmed/28103894
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0563-3
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