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Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of life
BACKGROUND: Although research in this area remains sparse, raising a child with some genetic disorders has been shown to adversely impact maternal health and family quality of life. The aim of this study was to investigate such impacts in families with a child with the CDKL5 disorder, a newly recogn...
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| Yayımlandı: | Orphanet J Rare Dis |
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| Asıl Yazarlar: | , , , , , |
| Materyal Türü: | Artigo |
| Dil: | Inglês |
| Baskı/Yayın Bilgisi: |
BioMed Central
2017
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| Konular: | |
| Online Erişim: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5248472/ https://ncbi.nlm.nih.gov/pubmed/28103894 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0563-3 |
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