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Clinical Practice Guidelines for Rare Diseases: The Orphanet Database

Clinical practice guidelines (CPGs) for rare diseases (RDs) are scarce, may be difficult to identify through Internet searches and may vary in quality depending on the source and methodology used. In order to contribute to the improvement of the diagnosis, treatment and care of patients, Orphanet (w...

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Dades bibliogràfiques
Publicat a:PLoS One
Autors principals: Pavan, Sonia, Rommel, Kathrin, Mateo Marquina, María Elena, Höhn, Sophie, Lanneau, Valérie, Rath, Ana
Format: Artigo
Idioma:Inglês
Publicat: Public Library of Science 2017
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5242437/
https://ncbi.nlm.nih.gov/pubmed/28099516
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0170365
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