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Clinical Practice Guidelines for Rare Diseases: The Orphanet Database

Clinical practice guidelines (CPGs) for rare diseases (RDs) are scarce, may be difficult to identify through Internet searches and may vary in quality depending on the source and methodology used. In order to contribute to the improvement of the diagnosis, treatment and care of patients, Orphanet (w...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:PLoS One
Main Authors: Pavan, Sonia, Rommel, Kathrin, Mateo Marquina, María Elena, Höhn, Sophie, Lanneau, Valérie, Rath, Ana
Format: Artigo
Jezik:Inglês
Izdano: Public Library of Science 2017
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5242437/
https://ncbi.nlm.nih.gov/pubmed/28099516
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0170365
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