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Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice

Consent processes for newborn bloodspot screening (NBS) are variable, with a lack of descriptive research that depicts how the offer of NBS is made to parents. We explored the experience, in practice, of consent for NBS. Semistructured interviews in two Canadian provinces were held with: (1) parents...

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書目詳細資料
發表在:Eur J Hum Genet
Main Authors: Etchegary, Holly, Nicholls, Stuart G, Tessier, Laure, Simmonds, Charlene, Potter, Beth K, Brehaut, Jamie C, Pullman, Daryl, Hayeems, Robyn, Zelenietz, Sari, Lamoureux, Monica, Milburn, Jennifer, Turner, Lesley, Chakraborty, Pranesh, Wilson, Brenda
格式: Artigo
語言:Inglês
出版: Nature Publishing Group 2016
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在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC5110054/
https://ncbi.nlm.nih.gov/pubmed/27302842
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2016.55
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