Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice

Consent processes for newborn bloodspot screening (NBS) are variable, with a lack of descriptive research that depicts how the offer of NBS is made to parents. We explored the experience, in practice, of consent for NBS. Semistructured interviews in two Canadian provinces were held with: (1) parents...

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Detalhes bibliográficos
Publicado no:Eur J Hum Genet
Main Authors: Etchegary, Holly, Nicholls, Stuart G, Tessier, Laure, Simmonds, Charlene, Potter, Beth K, Brehaut, Jamie C, Pullman, Daryl, Hayeems, Robyn, Zelenietz, Sari, Lamoureux, Monica, Milburn, Jennifer, Turner, Lesley, Chakraborty, Pranesh, Wilson, Brenda
Formato: Artigo
Idioma:Inglês
Publicado em: Nature Publishing Group 2016
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5110054/
https://ncbi.nlm.nih.gov/pubmed/27302842
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2016.55
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