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Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

BACKGROUND: The past 10 years have witnessed a significant growth in sharing of health data for secondary uses. Alongside this there has been growing interest in the public acceptability of data sharing and data linkage practices. Public acceptance is recognised as crucial for ensuring the legitimac...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:BMC Med Ethics
Main Authors: Aitken, Mhairi, de St. Jorre, Jenna, Pagliari, Claudia, Jepson, Ruth, Cunningham-Burley, Sarah
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2016
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5103425/
https://ncbi.nlm.nih.gov/pubmed/27832780
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12910-016-0153-x
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