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Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

BACKGROUND: The past 10 years have witnessed a significant growth in sharing of health data for secondary uses. Alongside this there has been growing interest in the public acceptability of data sharing and data linkage practices. Public acceptance is recognised as crucial for ensuring the legitimac...

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Dades bibliogràfiques
Publicat a:BMC Med Ethics
Autors principals: Aitken, Mhairi, de St. Jorre, Jenna, Pagliari, Claudia, Jepson, Ruth, Cunningham-Burley, Sarah
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2016
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5103425/
https://ncbi.nlm.nih.gov/pubmed/27832780
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12910-016-0153-x
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