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If you build it, they will come: unintended future uses of organised health data collections

BACKGROUND: Health research increasingly relies on organized collections of health data and biological samples. There are many types of sample and data collections that are used for health research, though these are collected for many purposes, not all of which are health-related. These collections...

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Pubblicato in:BMC Med Ethics
Autori principali: O’Doherty, Kieran C., Christofides, Emily, Yen, Jeffery, Bentzen, Heidi Beate, Burke, Wylie, Hallowell, Nina, Koenig, Barbara A., Willison, Donald J.
Natura: Artigo
Lingua:Inglês
Pubblicazione: BioMed Central 2016
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5011895/
https://ncbi.nlm.nih.gov/pubmed/27600117
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12910-016-0137-x
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