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State of rare disease management in Southeast Asia

BACKGROUND: Rare diseases, also referred to as orphan diseases, are characterised by their low prevalence with majority of them are chronically debilitating and life threatening. Given the low prevalence and the widely dispersed but very small patient base for each disease, there may often be a disp...

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Podrobná bibliografie
Vydáno v:Orphanet J Rare Dis
Hlavní autoři: Shafie, Asrul Akmal, Chaiyakunapruk, Nathorn, Supian, Azuwana, Lim, Jeremy, Zafra, Matt, Hassali, Mohamed Azmi Ahmad
Médium: Artigo
Jazyk:Inglês
Vydáno: BioMed Central 2016
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4969672/
https://ncbi.nlm.nih.gov/pubmed/27484654
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0460-9
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