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State of rare disease management in Southeast Asia

BACKGROUND: Rare diseases, also referred to as orphan diseases, are characterised by their low prevalence with majority of them are chronically debilitating and life threatening. Given the low prevalence and the widely dispersed but very small patient base for each disease, there may often be a disp...

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Dades bibliogràfiques
Publicat a:Orphanet J Rare Dis
Autors principals: Shafie, Asrul Akmal, Chaiyakunapruk, Nathorn, Supian, Azuwana, Lim, Jeremy, Zafra, Matt, Hassali, Mohamed Azmi Ahmad
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2016
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC4969672/
https://ncbi.nlm.nih.gov/pubmed/27484654
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0460-9
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