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State of rare disease management in Southeast Asia

BACKGROUND: Rare diseases, also referred to as orphan diseases, are characterised by their low prevalence with majority of them are chronically debilitating and life threatening. Given the low prevalence and the widely dispersed but very small patient base for each disease, there may often be a disp...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Shafie, Asrul Akmal, Chaiyakunapruk, Nathorn, Supian, Azuwana, Lim, Jeremy, Zafra, Matt, Hassali, Mohamed Azmi Ahmad
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2016
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4969672/
https://ncbi.nlm.nih.gov/pubmed/27484654
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0460-9
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