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The supportive care needs of parents with a child with a rare disease: results of an online survey
BACKGROUND: Parents caring for a child affected by a rare disease have unmet needs, the origins of which are complex and varied. Our aim was to determine the supportive care needs of parents caring for a child with a rare disease. METHODS: An online survey was developed consisting of 45 questions (1...
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| Gepubliceerd in: | BMC Fam Pract |
|---|---|
| Hoofdauteurs: | , , , |
| Formaat: | Artigo |
| Taal: | Inglês |
| Gepubliceerd in: |
BioMed Central
2016
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| Onderwerpen: | |
| Online toegang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4955113/ https://ncbi.nlm.nih.gov/pubmed/27439905 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12875-016-0488-x |
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