The supportive care needs of parents with a child with a rare disease: results of an online survey

nork Pelentsov, Lemuel J., Fielder, Andrea L., Laws, Thomas A., Esterman, Adrian J.
Argitaratua izan da BMC Fam Pract (2016)

Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease

nork Pelentsov, Lemuel J, Fielder, Andrea L, Laws, Thomas A, Esterman, Adrian J
Argitaratua izan da J Multidiscip Healthc (2016)