Creating an effective clinical registry for rare diseases

The exposure of clinicians to patients with rare gastrointestinal diseases is limited. This hurts clinical studies, which impedes accumulation of scientific knowledge on the natural disease course, treatment outcomes and prognosis in these patients. An excellent method to detect patterns on an aggre...

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Kaydedildi:
Detaylı Bibliyografya
Yayımlandı:United European Gastroenterol J
Asıl Yazarlar: D’Agnolo, Hedwig MA, Kievit, Wietske, Andrade, Raul J, Karlsen, Tom Hemming, Wedemeyer, Heiner, Drenth, Joost PH
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: SAGE Publications 2015
Konular:
Review Articles
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC4924439/
https://ncbi.nlm.nih.gov/pubmed/27403298
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2050640615618042
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