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Creating an effective clinical registry for rare diseases

The exposure of clinicians to patients with rare gastrointestinal diseases is limited. This hurts clinical studies, which impedes accumulation of scientific knowledge on the natural disease course, treatment outcomes and prognosis in these patients. An excellent method to detect patterns on an aggre...

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Bibliografiske detaljer
Udgivet i:United European Gastroenterol J
Main Authors: D’Agnolo, Hedwig MA, Kievit, Wietske, Andrade, Raul J, Karlsen, Tom Hemming, Wedemeyer, Heiner, Drenth, Joost PH
Format: Artigo
Sprog:Inglês
Udgivet: SAGE Publications 2015
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4924439/
https://ncbi.nlm.nih.gov/pubmed/27403298
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2050640615618042
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