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Creating an effective clinical registry for rare diseases

The exposure of clinicians to patients with rare gastrointestinal diseases is limited. This hurts clinical studies, which impedes accumulation of scientific knowledge on the natural disease course, treatment outcomes and prognosis in these patients. An excellent method to detect patterns on an aggre...

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Bibliografische gegevens
Gepubliceerd in:United European Gastroenterol J
Hoofdauteurs: D’Agnolo, Hedwig MA, Kievit, Wietske, Andrade, Raul J, Karlsen, Tom Hemming, Wedemeyer, Heiner, Drenth, Joost PH
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: SAGE Publications 2015
Onderwerpen:
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4924439/
https://ncbi.nlm.nih.gov/pubmed/27403298
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2050640615618042
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