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Creating an effective clinical registry for rare diseases

The exposure of clinicians to patients with rare gastrointestinal diseases is limited. This hurts clinical studies, which impedes accumulation of scientific knowledge on the natural disease course, treatment outcomes and prognosis in these patients. An excellent method to detect patterns on an aggre...

詳細記述

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書誌詳細
出版年:United European Gastroenterol J
主要な著者: D’Agnolo, Hedwig MA, Kievit, Wietske, Andrade, Raul J, Karlsen, Tom Hemming, Wedemeyer, Heiner, Drenth, Joost PH
フォーマット: Artigo
言語:Inglês
出版事項: SAGE Publications 2015
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC4924439/
https://ncbi.nlm.nih.gov/pubmed/27403298
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2050640615618042
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