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Creating an effective clinical registry for rare diseases

The exposure of clinicians to patients with rare gastrointestinal diseases is limited. This hurts clinical studies, which impedes accumulation of scientific knowledge on the natural disease course, treatment outcomes and prognosis in these patients. An excellent method to detect patterns on an aggre...

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Dettagli Bibliografici
Pubblicato in:United European Gastroenterol J
Autori principali: D’Agnolo, Hedwig MA, Kievit, Wietske, Andrade, Raul J, Karlsen, Tom Hemming, Wedemeyer, Heiner, Drenth, Joost PH
Natura: Artigo
Lingua:Inglês
Pubblicazione: SAGE Publications 2015
Soggetti:
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC4924439/
https://ncbi.nlm.nih.gov/pubmed/27403298
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2050640615618042
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