Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project

Whole exome/genome sequencing (WES/WGS) is increasingly offered to ostensibly healthy individuals. Understanding the motivations and concerns of research participants seeking out personal WGS and their preferences regarding return-of-results and data sharing will help optimize protocols for WES/WGS....

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Dettagli Bibliografici
Pubblicato in:Eur J Hum Genet
Autori principali: Sanderson, Saskia C, Linderman, Michael D, Suckiel, Sabrina A, Diaz, George A, Zinberg, Randi E, Ferryman, Kadija, Wasserstein, Melissa, Kasarskis, Andrew, Schadt, Eric E
Natura: Artigo
Lingua:Inglês
Pubblicazione: Nature Publishing Group 2016
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC4795230/
https://ncbi.nlm.nih.gov/pubmed/26036856
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2015.118
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