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‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine

In genetic medicine, a patient's diagnosis can mean their family members are also at risk, raising a question about how consent and confidentiality should function in clinical genetics. This question is particularly pressing when it is unclear whether a patient has shared information. Conventio...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:J Med Ethics
Main Authors: Dheensa, Sandi, Fenwick, Angela, Lucassen, Anneke
Format: Artigo
Jezik:Inglês
Izdano: BMJ Publishing Group 2016
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC4789809/
https://ncbi.nlm.nih.gov/pubmed/26744307
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/medethics-2015-102781
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