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‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine

In genetic medicine, a patient's diagnosis can mean their family members are also at risk, raising a question about how consent and confidentiality should function in clinical genetics. This question is particularly pressing when it is unclear whether a patient has shared information. Conventio...

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Podrobná bibliografie
Vydáno v:J Med Ethics
Hlavní autoři: Dheensa, Sandi, Fenwick, Angela, Lucassen, Anneke
Médium: Artigo
Jazyk:Inglês
Vydáno: BMJ Publishing Group 2016
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4789809/
https://ncbi.nlm.nih.gov/pubmed/26744307
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/medethics-2015-102781
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