The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks

BACKGROUND: In the past few years there has been a political imperative driving the creation of European Reference Networks as these are considered a promising way to achieve equity in access to the most up to date medical care across Europe. The right to equity in the access to care was established...

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Detaylı Bibliyografya
Yayımlandı:Orphanet J Rare Dis
Asıl Yazarlar: Evangelista, Teresinha, Hedley, Victoria, Atalaia, Antonio, Johnson, Matt, Lynn, Stephen, Le Cam, Yann, Bushby, Kate
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: BioMed Central 2016
Konular:
Position Statement
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC4765230/
https://ncbi.nlm.nih.gov/pubmed/26911987
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0398-y
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