Centres of Expertise and European Reference Networks: key issues in the field of rare diseases. The EUCERD Recommendations

BACKGROUND: Rare diseases, because of their intrinsic characteristics - large number of disorders and syndromes, low individual prevalence, severity, often limited information, lack of therapies - can benefit from collaboration and sharing of expertise while maximising the limited resources availabl...

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Bibliographische Detailangaben
Hauptverfasser: Taruscio, Domenica, Gentile, Amalia E., Evangelista, Teresinha, Frazzica, Rosa G., Bushby, Kate, Montserrat, Antoni Moliner
Format: Artigo
Sprache:Inglês
Veröffentlicht: Edizioni SIMTI - SIMTI Servizi Srl 2014
Schlagworte:
Regional, National and European actions in the field of Rare Diseases
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4044812/
https://ncbi.nlm.nih.gov/pubmed/24922304
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2450/2014.0026-14s
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