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Centres of Expertise and European Reference Networks: key issues in the field of rare diseases. The EUCERD Recommendations
BACKGROUND: Rare diseases, because of their intrinsic characteristics - large number of disorders and syndromes, low individual prevalence, severity, often limited information, lack of therapies - can benefit from collaboration and sharing of expertise while maximising the limited resources availabl...
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| Main Authors: | , , , , , |
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| Format: | Artigo |
| Jezik: | Inglês |
| Izdano: |
Edizioni SIMTI - SIMTI Servizi Srl
2014
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| Teme: | |
| Online dostop: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4044812/ https://ncbi.nlm.nih.gov/pubmed/24922304 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2450/2014.0026-14s |
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