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Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the “Benefit to Families”

Secondary findings for adult-onset diseases in pediatric clinical sequencing can benefit parents or other family members. In the absence of data showing harm, it is ethically reasonable for parents to request such information because in other types of medical decision-making they are often given dis...

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Библиографические подробности
Опубликовано в: :J Law Med Ethics
Главные авторы: Wilfond, Benjamin S., Fernandez, Conrad V., Green, Robert C.
Формат: Artigo
Язык:Inglês
Опубликовано: 2015
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Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC4617182/
https://ncbi.nlm.nih.gov/pubmed/26479565
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/jlme.12298
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