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Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the “Benefit to Families”

Secondary findings for adult-onset diseases in pediatric clinical sequencing can benefit parents or other family members. In the absence of data showing harm, it is ethically reasonable for parents to request such information because in other types of medical decision-making they are often given dis...

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Dades bibliogràfiques
Publicat a:J Law Med Ethics
Autors principals: Wilfond, Benjamin S., Fernandez, Conrad V., Green, Robert C.
Format: Artigo
Idioma:Inglês
Publicat: 2015
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC4617182/
https://ncbi.nlm.nih.gov/pubmed/26479565
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/jlme.12298
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