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Experience of Gastrostomy Using a Quality Care Framework: The Example of Rett Syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of gastrostomy were investigated. Weight change and family satisfaction following gastrostomy were explored. Data...

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Podrobná bibliografie
Vydáno v:Medicine (Baltimore)
Hlavní autoři: Downs, Jenny, Wong, Kingsley, Ravikumara, Madhur, Ellaway, Carolyn, Elliott, Elizabeth J., Christodoulou, John, Jacoby, Peter, Leonard, Helen
Médium: Artigo
Jazyk:Inglês
Vydáno: Wolters Kluwer Health 2014
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4603139/
https://ncbi.nlm.nih.gov/pubmed/25526491
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/MD.0000000000000328
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