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Experience of Gastrostomy Using a Quality Care Framework: The Example of Rett Syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of gastrostomy were investigated. Weight change and family satisfaction following gastrostomy were explored. Data...

詳細記述

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書誌詳細
出版年:Medicine (Baltimore)
主要な著者: Downs, Jenny, Wong, Kingsley, Ravikumara, Madhur, Ellaway, Carolyn, Elliott, Elizabeth J., Christodoulou, John, Jacoby, Peter, Leonard, Helen
フォーマット: Artigo
言語:Inglês
出版事項: Wolters Kluwer Health 2014
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC4603139/
https://ncbi.nlm.nih.gov/pubmed/25526491
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/MD.0000000000000328
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