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Experience of Gastrostomy Using a Quality Care Framework: The Example of Rett Syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of gastrostomy were investigated. Weight change and family satisfaction following gastrostomy were explored. Data...

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Publicat a:Medicine (Baltimore)
Autors principals: Downs, Jenny, Wong, Kingsley, Ravikumara, Madhur, Ellaway, Carolyn, Elliott, Elizabeth J., Christodoulou, John, Jacoby, Peter, Leonard, Helen
Format: Artigo
Idioma:Inglês
Publicat: Wolters Kluwer Health 2014
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC4603139/
https://ncbi.nlm.nih.gov/pubmed/25526491
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/MD.0000000000000328
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