Preferences for results delivery from Exome Sequencing/Genome Sequencing: Genome results preferences

PURPOSE: To explore the implications of sequencing information and stated preferences for return of results among research participants. METHODS: Six focus groups were held with 39 ClinSeq(®) participants. Groups included participants who had received results, those who had not, those affected with...

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Detalhes bibliográficos
Publicado no:Genet Med
Main Authors: Wright, Martha Frances, Lewis, Katie Leigh, Fisher, Tyler Charles, Hooker, Gillian Wells, Emanuel, Toby Elliot, Biesecker, Leslie Glen, Biesecker, Barbara Bowles
Formato: Artigo
Idioma:Inglês
Publicado em: 2013
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4597884/
https://ncbi.nlm.nih.gov/pubmed/24310310
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2013.170
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